Niazkhani, Z and Pirnejad, H and Cheshmekaboodia, M and Nikibakhsh, A.A and Makhdoomi, K and Abkhiz, S and Zeynali, J and Jafari, L and Mivefroshan, A and Taghizadeh Afshari, A and Mahmoodzadeh, H and Bal, R (2018) Enabling informed policymaking for chronic kidney disease with a registry: Initiatory steps in Iran and the path forward. Health Policy and Technology, 7 (1).
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Abstract
Chronic kidney disease (CKD) registries have been used for more than half a century. Iran lacks a comprehensive registry to capture data of all CKD patients for an informed care planning and policy making. We aimed to identify the objectives and possible challenges for developing a CKD registry and also to define its minimum data set (MDS) in our healthcare context. Methods: This was a mixed-method study conducted in Iran from fall 2016 till summer 2017. The qualitative part included document analysis and 26 semi-structured interviews with 17 clinicians and managers involved in CKD care. This data was analyzed using the "grounded theory". Then, a modified Delphi survey was conducted. Percentages and mode values were used for analysis.
| Item Type: | Article |
|---|---|
| Uncontrolled Keywords: | Chronic kidney disease; Renal Insufficiency, Chronic; Registries; Minimum data set; Mixed method; Iran |
| Subjects: | R Medicine > R Medicine (General) |
| Depositing User: | Unnamed user with email gholipour.s@umsu.ac.ir |
| Date Deposited: | 25 Apr 2018 06:03 |
| Last Modified: | 27 Jan 2019 07:58 |
| URI: | http://eprints.umsu.ac.ir/id/eprint/4724 |
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