A QUALITATIVE STUDY OF HEMODIALYSIS PATIENTS’ EXPERIENCE OF PERCEIVED PERSONAL SOCIAL SUPPORT

Aghakhani, N and Habibzadeh, H and Molazem, Z and Sharif, F (2014) A QUALITATIVE STUDY OF HEMODIALYSIS PATIENTS’ EXPERIENCE OF PERCEIVED PERSONAL SOCIAL SUPPORT. The Journal of Urmia Nursing and Midwifery Faculty, 12 (6). pp. 409-419.

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Abstract

Chronic renal failure disease is considered as one of the highest causes for mortality rate in Iran that affects on physical, psychological and social health aspects of patients. Various treatments like hemodialysis prolong the life of these patients, but they must tolerate many complications in many aspects. Due to the interactional and cultural nature, social support sounds to be vital and necessary to be investigated in patients. The aim of this study was to highlight perceived personal social support in hemodialysis wards as experienced by patients with chronic renal failure. Materials & Methods: A grounded theory approach was used in this qualitative research. Key informants were 22 patients who were treated by hemodialysis. Three nurses, 4 general practitioners, a specialist and two family members participated in the study, and they were interviewed from April to September 2012. Interviews were guided to unveil the perception of the drastic changes in their existence, needs for social support for the disease complications, and hemodialysis as a treatment process. Purposive sampling was done up to data saturation. Data analysis was done based on Strauss and Corbin method. Constant comparison analysis was done until data saturation. Results: The research results appeared in 3 steps. In the first step, five main themes from 993 first codes were explored based on the meaning of general themes including “threats caused by disease and hemodialysis ", “searching for a social support", “attained social support”, “subjective values and beliefs”, and " acquired social support". Conclusion: The qualitative research completed our knowledge about patients’ needs and problems for social support. This issue reveals many problems for supporting the patients that are experienced by health team members, family members and social organizations. The findings reveals that individual experiences must be considered if social support should be done, and if health providers and policy makers consider these items in health facilities

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