A Global Comparison of Dementia and Alzheimer Disease Registries: A Systematic Review

Context: Population aging is one of the most important health concerns worldwide, leading to an increase in the preva
chronic diseases such as dementia and Alzheimer disease (AD). Disease registries have great potential to determine the e
clinical care, healthcare costs, and healthcare improvement for patients. Although there are several registries for demen
AD worldwide, no systematic review is so far performed in this area. Therefore, the current study aimed at identifying th
information in dementia and AD registries and comparing their characteristics.
Evidence Acquisition: The current systematic review studied the dementia and AD registries in English literature based
words in the title with no time limitations, using the following databases: Institute of Electrical and Electronics Engineer
ProQuest, PubMed, Science Direct, Web of Science, Scopus, Ovid Medline, Scientific Information Database (SID), and IranMed
liest entry to 07 February, 2017). In the current research, only the studies related to disease registries were evaluated.
Results: A total of 28 articles meeting the inclusion criteria were evaluated in the current study. Based on the findings, 22 de
and AD registries were identified. The majority of the registries (13 registries) were from North America. In half of the re
patient recruitment was performed among outpatients and inpatients referred to healthcare centers. The comparison of th
tural information in these registry systems showed that they differed in terms of objectives, data sources, minimum data s
data quality.
Conclusions: The current study was the 1st systematic review of dementia and AD registries. Since there are no internation
dards to develop dementia and AD registries, comprehensive analysis can be effective to promote disease registry systems.
ected P